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Supporting the Phoebe Research Fund

The Phoebe Research Fund

In 2015 we met Phoebe Crowson and her mum Zoe. Phoebe is remarkable girl who suffers with a condition called Recessive Dystrophic Epidermolysis Bullosa. It means that the slightest touch or knock causes Phoebe's skin to blister, both internally and externally. The result is that she find it difficult to live the normal rough and tumble life of a child, and regularly has to undergo operations.


Zoe set up the Phoebe Research Fund in 2015 in order to raise money for research into the condition. We met them both shortly after the charity was formed and have been supporters ever since. Inspired by Phoebe's bravery and Zoe's determination to give Phoebe the best life she can possibly have we do everything we can to support them.

So far we have raised over £5,000 for the charity which formed part of the larger donation presented to professor John McGrath at Kings College, London to further his research into the condition, by the end of 2017 we would like to have doubled this amount.


The focus of our fundraising is two annual events: A networking garden party in June, and the annual Pilot Fish Autumn Golf Day


If you would like to find out more about the Phoebe Research Fund, go to their website



If you would like to support any of our events, phone Kate on 01778 309777 or fill in the contact form


Phoebe Research Fund donation to Professor John McGrath